Butterfly Trust (The) (Midlothian)

The Butterfly Trust provides support in the community for people affected by cystic fibrosis throughout Scotland. Our team of trained volunteers provide face to face support services that include emotional support, help to negotiate official systems in regard to housing, education and employment issues, mentoring for young people with cystic fibrosis, massage therapy for young adults with the condition and transport to hospital appointments for people who are not sick enough to qualify for mobility help and cannot afford a car.

Current opportunities

Cystic Fibrosis is a progressive, life-limiting, genetically inherited condition with no cure. We are the leading provider of social support to the Cystic Fibrosis community of Scotland, providing face-to-face services for individuals and families, and access to the support needed to ensure they benefit from optimum homecare and enjoy the best quality of life. Volunteering is a fantastic way to make a difference to the life of someone else, and an opportunity to enhance your own life and build new skills. The support worker undertakes tasks that make a real difference to the quality of life for the young people we support. He/she is our first point of contact with clients responding to requests that are often for practical help but also just someone to talk to. Support workers receive training to develop skills in understanding and completing official forms, and can be trained to provide advocacy if they wish to be more challenged.

Volunteering is a fantastic way to make a difference to the life of someone else. It can also be an incredible opportunity to enhance your own life and build new skills to help your personal and career development. Our drivers provide transport for people affected by Cystic Fibrosis to hospital appointments. Our clients do not need any physical help getting in and out of the vehicle. Children and young people with Cystic Fibrosis have to attend clinic appointments in hospitals to have their health monitored, usually every three months. Traveling in public transport poses risks of infection and waiting for transport in our typical inclement weather is undesirable because of their chronic lung condition. Our drivers provide transport from home ensuring a safe and comfortable journey. This service makes a real difference by reducing some of the pressure on families at this time.

Befriending is a fantastic, rewarding, way to make a real difference to the life of someone else. Apart from the personal satisfaction of helping someone, it’s also an opportunity to enhance your own life experience and build new skills. Our befrienders offer one to one support to a young person aged 8 to 18, who has Cystic Fibrosis. Young people living with this condition have a demanding daily treatment regime at home and sometimes experience limitations that can affect their confidence and ability to cope with the challenges of everyday living. They may also be socially isolated because of their condition. A befriender will meet with the young person every 1 to 2 weeks, to build a trusting one to one relationship. A commitment of at least a year is sought - this will allow the young person time, space and a suitable environment to explore their feelings, discuss their fears, develop life skills and grow in the areas where they may be struggling.