The Butterfly Trust

Charity registered in Scotland SC033174

Cystic Fibrosis is a progressive, life limiting genetically inherited condition with 1 in 25 people carrying the faulty gene that causes the condition. There is currently no cure for Cystic Fibrosis. The Butterfly Trust is the leading provider of social support to the Cystic Fibrosis community of Scotland. We were founded in 2002 to provide face to face services for people with Cystic Fibrosis and their families. Our aim is that people living with Cystic Fibrosis will have access to the support they need to ensure they can benefit from optimum homecare and enjoy the best quality of life in the community.


Current opportunities

Our befrienders offer one to one support to a young person aged 8 to 18, who has Cystic Fibrosis. Young people living with this condition have a demanding daily treatment regime at home and sometimes experience limitations that can affect their confidence and ability to cope with the challenges of everyday living. They may also be socially isolated because of their condition. A befriender will meet with the young person every 1 to 2 weeks, to build a trusting one to one relationship. This will allow the young person space and a suitable environment to explore their feelings, discuss their fears, develop life skills and grow in the areas where they may be struggling. Desirable qualities required include good listening skills, patience and an adaptable attitude. Training and support is provided; and expenses reimbursed. The Butterfly Trust provides unconditional, non-judgemental, confidential services that are designed to improve the quality of life for young people living with Cystic Fibrosis. These outreach services are delivered by trained volunteers who provide face to face support across the country. This befriending opportunity allows the befriender to make a positive difference for a young person, while also growing their own experience and enhancing their life skills. Befrienders must have held a full driving licence for at least 2 years and have the use of a smoke free car.

Our support workers provide social support in their local community for people affected by Cystic Fibrosis. They offer a listening ear and help to negotiate official systems that include housing, benefits, education, employment and independent living. The support worker is our first point of contact with clients in their area, responding to requests that are often for help to acquire home improvements, disability related benefits or just someone to talk to. Desirable qualities required include good verbal and written communications skills, sensitivity and an adaptable approach. Training and support is provided; and expenses reimbursed. Support workers can also be trained to provide advocacy if they wish to be more challenged, learn new skills or perhaps make good use of those they already have. The Butterfly Trust provides unconditional, non-judgemental, confidential services that are designed to improve the quality of life for young people living with Cystic Fibrosis. These outreach services are delivered by trained volunteers who provide face to face support across the country. The support worker role offers an opportunity to utilise your professional or personal life experience for the purpose of enhancing the life of a family or individual living with the impact of Cystic Fibrosis. Support Workers need to hold a full driving licence and have access to a car.