PSPA – Progressive Supranuclear Palsy Association

PSPA is a national charity providing support and information to people living with PSP and CBD, while funding research into treatments and ultimately a cure. We rely entirely on voluntary donations. You can see more about this here at https://pspassociation.org.uk/


Current opportunity

PSPA is a national charity providing support and information to people living with PSP and CBD, while funding research into treatments and ultimately a cure. We rely entirely on voluntary donations. You can see more about this here at https://pspassociation.org.uk/ *Progressive Supranuclear Palsy (PSP) is a neurological condition caused by the premature loss of nerve cells in certain parts of the brain. *Corticobasal Degeneration (CBD) is a degenerative brain disease that affects people from the age of 40 onwards. PSPA covers the United Kingdom and works very closely with other PSP organisations across the world working together supporting research and the provision of information and support into PSP and CBD. Following funding from the Scottish Government, we can now increase our work in Scotland including increasing the volunteering opportunities here. Volunteers are the lifeblood of PSPA - We value the skills, experience, commitment and enthusiasm that our volunteers bring – so we are recruiting in Scotland to enable us to reach out to more people affected by PSP and CBD. By working together, we can make a real difference to people’s lives. PSP & CBD are rare and little known. Education Volunteers can improve this situation. Our aim is to make education and training available to as many health and social care professionals as possible, many of whom may not have come across PSP or CBD before. Our Education Volunteer role will help health and social care professionals to understand key information about the impact of living with PSP & CBD and thereby improve their practice. We also aim to have our volunteers raise awareness in local communities by them offering informative talks to interested groups. Volunteers will need to be enthusiastic, enjoy speaking to groups and able to manage a group effectively. Ideally they will have an understanding of PSP & CBD, be passionate about raising awareness and have empathy with the aims of PSPA. Experience in public speaking and confidence in the use of PowerPoint will help in this role and those interested should be able to travel within their local area. We will provide training and resources to enable our Education Volunteers plan and deliver free training sessions on PSP, CBD and the services offered by PSPA. We offer a comprehensive learning package that covers all aspects of the role. The rewards of being an Education Volunteer with us include; the opportunity for self-development, the opportunity to meet new people and to be valued as a part of a team. There is also the unique reward of making a difference to people living with PSP & CBD and their families. Anybody wishing to express an interest in these roles should contact tel.: 01327 356137 or Email: volunteering@pspassociation.org.uk or read more at https://pspassociation.org.uk/get-involved/volunteering/ways-to-volunteer/education-and-awareness-volunteer/