Butterfly Trust (SL)

Cystic Fibrosis is a progressive, life limiting genetically inherited condition with 1 in 25 people
carrying the faulty gene that causes the condition. There is currently no cure for Cystic Fibrosis.
The Butterfly Trust is the leading provider of social support to the Cystic Fibrosis community of
Scotland. We were founded in 2002 to provide face to face services for people with Cystic Fibrosis
and their families. Our aim is that people living with Cystic Fibrosis will have access to the support
they need to ensure they can benefit from optimum homecare and enjoy the best quality of life in
the community.


Current opportunities

Our mentors offer crucial support to young adults with Cystic Fibrosis in improving socialisation, broadening horizons and exploring concerns to improve self-esteem, enhance coping skills and the person's quality of life. Young adults living with this condition have a demanding daily treatment regime at home and sometimes experience limitations that can affect their confidence and ability to cope with the challenges of everyday living. They may also be socially isolated because of their condition. A mentor will meet with a young adult regularly (every 2-3 weeks) to build a trusting one-to-one relationship allowing the person to explore their feelings, discuss their aspirations and grow life skills, to support them in achieving goals or just giving them someone to talk to. This opportunity also gives the mentor the chance to expand their own experience and enhance their life skills. The young adult will live within a reasonable distance of the mentor, who may sometimes take them in their car to an activity or environment away from home. A commitment of at least a year is sought - this will allow the young adult time, space and a suitable environment to explore their feelings, discuss their fears, develop life skills and grow in the areas where they may be struggling.

This befriending opportunity allows the befriender to make a positive difference for a young person, while also growing their own experience and enhancing their life skills. Our befrienders offer one to one support to a young person aged 8 to 18, who has Cystic Fibrosis. Young people living with this condition have a demanding daily treatment regime at home and sometimes experience limitations that can affect their confidence and ability to cope with the challenges of everyday living. They may also be socially isolated because of their condition. A befriender will meet with the young person every 1 to 2 weeks, usually taking them away from their home environment, to build a trusting one to one relationship. A commitment of at least a year is required - this will allow the young person time, space and a suitable environment to explore their feelings, discuss their fears, develop life skills and grow in the areas where they may be struggling.