• VO68021
  • Board/trustee role


Since 2000, we‘ve invested over £1.5m in biomedical research and, in terms of scientific papers published, ME Research UK has funded more projects (45 to date) on ME/CFS than any other single organisation in the world outside North America. With our small, committed team of core staff, an advisory panel of professional scientists, and a dedicated Board of Trustees, we are committed to establishing ME Research UK as a major force for change that will make a real, long-term difference to the lives and prospects of people with the disease. Presently, we have on-going projects in institutions in Dundee, Newcastle, Berlin, Brussels, Vancouver and Canberra.

Organisation aims and objectives

ME Research UK is a UK charity with the principal aim of commissioning and funding scientific (biomedical) investigation into the causes, consequences and treatment of myalgic encephalomyelitis/Chronic Fatigue Syndrome (also known as ME/CFS. This is a debilitating illness which affects between 120,000 and 240,000 people in the UK, but one which is not well understood nor, in many cases, properly recognised.


Legal duties apply. A person will not be eligible for appointment as a Charity Trustee if he/she is: - disqualified from being a trustee under the 2005 Act; or any statutory re-enactment thereof or an employee of ME Research UK
Experience required: Individuals are sought who have a strong empathy with our research mission and who possess a diverse range of experience, skills, and expertise with an interest in scientific research and with an understanding of our work and ambitions.
Travel details: The Board meets four times per year in Perth but additional ad-hoc meeting may be held in-between (Skype or telephone conferencing possible). Reasonable expenses will be paid for travel to meetings and agreed out of pocket expenditure.
Minimum age: 16


Expenses paid: Yes
Training details: New Trustees will be provided with documentation and Guidance materials to provide details of their role and duties and a current Trustee will act as mentor.
Support: Named Contact For Volunteer,
Wheelchair Access/Disabled Access Toilet

Last updated 5 months ago

Please note, organisations are currently experiencing a large volume of enquiries from people looking to help out. They may not always be able to meet this demand so please be patient, you may not receive a quick response or be assigned to a role.