PSPA is a national charity providing support and information to people living with PSP and CBD, while funding research into treatments and ultimately a cure. We rely entirely on voluntary donations.
Progressive Supranuclear Palsy (PSP) is a neurological condition caused by the premature loss of nerve cells in certain parts of the brain.
Corticobasal Degeneration (CBD) is a degenerative brain disease that affects people from the age of 40 onwards.
PSPA covers the United Kingdom and works very closely with other PSP organisations across the world working together supporting research and the provision of information and support into PSP and CBD.
Volunteers are the lifeblood of PSPA - We value the skills, experience, commitment and enthusiasm that our volunteers bring – so we want more of you in Scotland to join us and help us to reach out to more people affected by PSP and CBD. By working together, we can make a real difference to people’s lives
PSP & CBD are rare and little known. Education Volunteers can help us improve this situation. One of our aims is to make education and training available to as many health and social care professionals as possible, many of whom may not have come across PSP or CBD before. Our Education Volunteer role will help health and social care professionals to understand key information about the impact of living with PSP & CBD and thereby improve their practice. We also aim to have our volunteers raise awareness in local communities by offering informative talks to interested groups.
The PSP Association offers support and information to people living with the neurological conditions PSP and CBD, while supporting research into treatments and ultimately a cure for these conditions. PSP is Progressive Supranuclear Palsy and CBD is Corticobasal degeneration. Our aim is that people affected by PSP and CBD do not feel they have to face the future alone. We offer support through our Helpline and Information Services, Local Groups, Specialist Care Advisers, a wide range of Resources and Publications and through the funding of Research.
Adults over 18. Due to the sensitive nature of discussing and presenting all aspects of progressive illness, we feel this role is not suitable for people currently caring for loved ones with PSP|CBD or people very recently bereaved.
Experience required: Ideally you will have an understanding of PSP & CBD, be passionate about raising awareness and have empathy with the aims of PSPA. Experience in public speaking and confidence in the use of PowerPoint will help you in this role and you should be able to travel within your local area.The rewards of being an Education Volunteer with us include; the opportunity for self-development, the opportunity to meet new people and to be valued as a part of a team.
Minimum age: 18
Expenses paid: Yes
Training details: We will provide training and resources to enable you to plan and deliver free training sessions on PSP, CBD and the services offered by PSPA. We offer a comprehensive learning package that can be completed in your own time and covers all aspects of the role. A face to face training session completes the process. There will also be an ongoing support and opportunities for you to meet and get to know members of staff, other volunteers and increase your understanding of the wider work of PSPA.
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