Description
The family support worker is The Butterfly Trusts’ first point of contact with clients in their area, responding to requests that are often for help. The volunteer provides social support in their local community for people affected by Cystic Fibrosis. They offer a listening ear and help to negotiate official systems that include housing, benefits, education, employment and independent living.
The support worker role offers an opportunity to utilise your professional or personal life experience for the purpose of enhancing the life of a family or individual living with the impact of Cystic Fibrosis. Training and support is available.
Family support workers can also be trained to provide advocacy if they wish to be more challenged, learn new skills or perhaps make good use of those they already have.
Organisation aims and objectives
Cystic Fibrosis is a progressive, life limiting genetically inherited condition with 1 in 25 people carrying the faulty gene that causes the condition. There is currently no cure for Cystic Fibrosis. The Butterfly Trust is the leading provider of social support to the Cystic Fibrosis community of Scotland. We were founded in 2002 to provide face to face services for people with Cystic Fibrosis and their families. Our aim is that people living with Cystic Fibrosis will have access to the support they need to ensure they can benefit from optimum homecare and enjoy the best quality of life in the community.
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Restrictions
Experience required: Desirable qualities required include good verbal and written communications skills, sensitivity, reliability and an adaptable approach.
Travel details: The clients will be within a reasonable travelling distance of the support worker’s home.
Minimum age: 19
Support
Expenses paid: Yes
Expenses details: Travelling costs, mileage (30p/mile), postage/stationery, refreshments when appropriate.
Training details: One day induction event covering the condition, the Trust and its procedures, interpersonal skills, introduction to some of the official systems. Ongoing training covering individual official systems/forms (eg DWP) in detail. Support from member of the Trust staff.
Support:
Named Contact For Volunteer